Book Details Title: I Know You’re in There: Winning Our War Against Autism | |
Book DescriptionReview “Parents need to read I Know You’re In There. This motivating and encouraging story proves that optimal outcomes are possible for children with autism when families look positively to the future by embracing cutting-edge medical treatment combined with standard-of-care rehabilitation.” —Richard Frye, PhD, MD, Chief of The Division of Neurodevelopmental Disorders, Phoenix Children’s Hospital neurologist and autism expert“Marcia Hinds provides a detailed case history of how her child responded to various treatment interventions, many of which are not yet considered evidenced-bases by the scientific community. I truly hope this book will inspire researchers worldwide to study these interventions. Once validated, these treatments will likely become accepted by the autism and medical communities and covered by health insurance companies.” — Steve Edelson, PhD, Executive Director, Autism Research Institute “Ryan’s recovery was not miraculous. It was the result of having his medical illness treated. His family persisted in looking for answers until they found a doctor who would do just that. Maybe that was the miracle.” —Bruce L. Russell, MD “Autism doesn’t come with a manual. It only comes with a parent who never gives up.” —Melinda Sharma, PhD, Autism Spectrum GPS “I Know You’re in There shows that autism is not a hardwired impairment stamped into the brain by the child’s genes and destined to remain fixed forever, as we’re often told. Instead, it is the TOTAL LOAD of challenges to a child’s whole system that overloads the brain and causes the behaviors associated with autism. Even a few treatments that reduce the load and increase supports can make a huge difference. Ryan’s recovery is a testimony to this approach.” —Martha Herbert, MD, Harvard neurologist, researcher, and author of The Autism Revolution “I Know You’re in There should be given to every family when they receive an autism diagnosis. This book will help parents understand the importance of digging deep to identify possible underlying immune dysfunction rather than just accepting therapy alone as the only option for improving development. More importantly Ryan’s story should serve as a source of encouragement to families struggling to manage daily life as they navigate the challenges of this complex disease process. The title is perfect. If you know your child is in there, use this book to inspire you in the hardest of times to never, ever give up hope that you can find a path to recovery.” —Victoria L. Falcone, DO, Falcone Center for Functional and Integrative Medicine “After reading Ryan’s story, parents will realize there is hope and recovery is possible. This book shows the medical treatment is different and individual for every child. I Know You’re in There helps the reader understand that medicine alone is not enough. We must use a child’s interests and strengths to help them overcome autism.” —Sidney McDonald Baker, MD, founder of Autism360.org “There is an urgent need for the worldwide autism paradigm to change: children with the diagnostic label of autism are medically ill and need help. With proper medical intervention, they can recover or significantly improve in health and function. Every child deserves that chance. Marcia Hinds’s book, I Know You’re in There, encourages parents, therapists, and others to give these precious children this opportunity. Marcia wants all children to have what her recovered son now has; she can’t leave the other kids behind.” —Ed and Teri Arranga, president and executive director, AutismOne Read more About the Author Marcia Hinds will make you rethink autism. She has degrees in psychology and sociology from UCLA and teaching credentials. But Marcia’s most impressive credential is that she is Ryan’s mom and their family survived autism. Dr. James B. Adams is an autism researcher with over forty publications focused on biomedical causes of autism and treatments for it, the president of the Autism Society of Greater Phoenix for nineteen years, the president of the Autism Nutrition Research Center, the co-leader of the scientific advisory board of the Autism Research Institute, and the co-founder of the Neurological Health Foundation. Read more Customers Review: As parents of three boys–one who is Asperger’s, one mild/moderate autism, and the third ADHD and an anxiety disorder–the prospect of reading someone else’s journey with autism has never held much interest to me. Although I’m always willing to share what knowledge or experience I have with another, I frankly couldn’t emotionally handle someone else’s A word story while so totally immersed in our own. That is until Marcia Hinds’ book came along. In the interest of full disclosure, I know Marcia personally and have met her family. They are truly amazing individuals who’ve come through this arduous journey with their humor and patience intact. I might even venture to say they are better people for it. Although our journey is far from complete, I know my husband and I are. My son who is most severely affected by autism has had many of the same medical interventions as Marcia describes in the book. He was suffering from Cyclical Vomiting Syndrome (CVS), severe migraines, and seizures. Every month, he would vomit uncontrollably for a couple of days, preceded and followed by migraines. Six months into antiviral therapy, the CVS stopped and the migraines went from several a month to one every few months. This was huge for us and Noah improved physically, emotionally and academically. It was our little miracle. That being said, Noah hasn’t responded as significantly as Ryan. For me, the beautiful thing about Marcia’s book is that she acknowledges that not every child will experience the amazing outcome that Ryan had. Equal effort does not always guarantee equal outcome. The book enforces that these children, like all children, are individuals and will respond in their own way to both medical and behavioral interventions. For me, the book provides the reader with avenues to explore, is frank about the hard work and determination needed when working with a child on the spectrum, and provides that much needed dose of hope that many of us, whether new to Autism Island or a stranded veteran, desperately need. As parents, we are told by educators and medical professionals in subtle and not so subtle ways what are children can and cannot achieve and that autism is not curable. The best we can do is smile, nod our heads, and then proceed to kick autism’s ass in whatever way we can. Thank you, Marcia, for reminding me of that and clearing at least some of the smoke on the autism battlefield.
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